Wednesday, December 5, 2012

Let The Planning Begin.................



It has been a while since my last update. Thea and I are finally planning our wedding, so we are making progress. Our biggest goal at the moment is to find a venue for 200 people. We are looking for somewhere that we can have everything together in one place and that can accommodate about 10 wheelchairs. I picked my uncle Michael as my best man, and I'm still figuring out my ushers, trust me it’s not easy. We took our engagement pictures; they are the best pictures that I’ve ever taken. Thea loves them and that is saying something because she doesn’t like her picture taken. Our goal is still October 2014. We are both glad that we can finally start planning in detail instead of just talking about planning. I get more nervous everyday but I realize that it will all be worth it, when I’m at the alter saying my vows. Although we have a long way to go, it’s amazing and a bit scary to me to see and have a say in how our wedding gets put together.

I finally have support, my cousin is my aide. This is one of the biggest obstacles that we had to get through before everything else. Now that I have the support, it’s up to Thea and I on when I move in with Thea and not the state. We are looking at fall 2013 or spring 2014 for the big move. I already have so many friends that are just waiting for me to move to Baltimore. I’m so humble to know that so many people are waiting to be a big part of my life.    Although I will always cherish my memories that I have so far in my life, I can’t wait to start my new life with Thea! We still have a lot to figure out, however I have gotten closer to God and I know he will lead me on the right path. I now attend church on a regular basis and that is really helping my relationship with God. I will write more as our long journey continues.

Merry Christmas and Happy New Year Everybody!

Thursday, June 21, 2012

GROWING UP WASN'T EASY..........


Growing up with cerebral palsy was anything but easy.  I had to worked so much harder just to do the little things that a “normal” child does really easy, i.e. grab things, speak, play games, even when I ate it was a challenge.  Before I could speak, I would talk with my eyes because I knew where everything was.  As I said in my last blog, I had an incredible family who didn’t treat me any different.  If I couldn’t do something, they would modify it or they wouldn’t do it.  If a place wasn’t accessible, we wouldn’t go because they thought if I couldn’t go, they wouldn’t go.  We would always play games.  One time we were playing tee ball and my uncle was holding me up and the ball came to us.  Well he forgot that he had me and when the ball was coming towards us, he reacted by dropping me to catch the ball!  We got the out to win the game! We laughed so hard!

Don’t think that I never was punished because I had a disability, because that’s far from the truth.  If I acted up, I was punished like everybody else.  There was no disability sympathy from my family.  I had many of time outs.  Once I knew I couldn’t the play the disability card, I stopped trying because it would only make it worse.  I had chores,  my mom didn’t care how they got done or how long it took me, just as long as I did it. 

Unfortunately, the real world wasn’t anything like my family.  When I went somewhere people would stare at me and make comments about me and my family.  I didn’t understand why people were staring at me, I was l embarrassed and  I didn’t know what to think. Whenever I played with kids in my neighborhood I was always picked last because of my disability.  Sometimes I would just avoid the other kids just because I knew what was coming. I didn’t have any real friends until I got to high school.

  School had its ups and downs.   I went to a special school for elementary school and middle.  My elementary school was the best they treated us like “normal” typical students.  They wanted us to be as independent as we could be.  I had a walker that they would put me in every morning so I could go wherever I wanted. I would run errands for teachers. I loved all my teachers because they made learning fun. They taught me how to try stuff no matter how hard it was. I owe a lot of credit to them.

Middle school was a whole different story for the first time I was in regular classes as I should have been. However, I was picked on every day by other students. After a while it got to be where I didn’t want to go to school because I didn’t fit in at all.  I missed a lot of days and for this reason I started getting bad grades and that was a wake up call. I finally realized that I needed to go if I ever wanted to get past middle school and into high school.

For high school I wanted to go to my home school that was ten minutes away.  The school system wanted to send me to a school that would have me on the bus for an hour. I was tired of that. My mom fought to get me into Laurel High School, I was the first student in a wheelchair there. After we fought like hell they took me. This was one of the best moves of my life. The first day I had people walking up to me and talking to me. This was where I met my first real friend. I had an aide that helped me with everything that I needed. I was picked on very little but when I was picked on somebody always had my back. I even went to the prom with my best friend.

On my last day of my senior year, the chairman of special education who never wanted me at that school them came up to me and said he was wrong. That was the best compliment I ever gotten.  And when I got my diploma he was the first one to congratulate me. And we both had tears coming down our faces.

To be continued……………….